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American Journal of Critical Care. 2009;18: 418-426 doi:10.4037/ajcc2009473
Copyright © 2009 by the American Association of Critical-Care Nurses.
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CE Article

Surrogate Consent for Genomics Research in Intensive Care

By Ann K. Shelton, RN, PhD, Anne F. Fish, RN, PhD, J. Perren Cobb, MD, Jean A. Bachman, RN, DSN, Ruth L. Jenkins, RN, PhD, Victor Battistich, PhD and Bradley D. Freeman, MD. Ann K. Shelton is program chair for nursing at ITT-Technical Institute in St Louis, Missouri. Anne F. Fish, Jean A. Bachman, and Ruth L. Jenkins are associate professors, College of Nursing, and Victor Battistich is an associate professor, College of Education, University of Missouri-St Louis, St Louis, Missouri. J. Perren Cobb is professor of surgery and associate professor of genetics and Bradley D. Freeman is associate professor of surgery at Washington University School of Medicine, St Louis, Missouri.

Corresponding author: Ann K. Shelton, RN, MSN, PhD, 1203 Summer Lynne Dr, O’Fallon, MO 63366 (e-mail: stlKshelton @aol.com).

Surrogate decision makers may be poorly prepared to give informed consent for genomics research for their loved ones in intensive care. A review of the challenges and strategies associated with obtaining surrogates’ consent for genomics research in intensive care patients revealed that few well-controlled studies have been done on this topic. Yet, a major theme in the literature is the role of health care professionals in guiding surrogates through the informed consent process rather than simply witnessing a signature. Informed consent requires explicit strategies to approach potential surrogates effectively, educate them, and ensure that informed consent has been attained.

Notice to CE enrollees:A closed-book, multiple-choice examination following this article tests your understanding of the following objectives:
  1. Understand the challenges associated with obtaining surrogates’ consent for genomics research.
  2. Describe strategies for obtaining surrogates’ consent for genomics research.
  3. Recognize the importance of evaluating surrogates’ understanding of essential information before concluding the consent process.
To read this article and take the CE test online, visit www.ajcconline.org and click "CE Articles in This Issue." No CE test fee for AACN members.






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Copyright © 2009 by the American Association of Critical-Care Nurses.